The Reality of Chronic Illness: Acceptance and Adaptation #16

Navigating life with chronic illnesses can be a multifaceted journey, often filled with unexpected challenges and personal revelations. Deborah shares her own experiences with diabetes and epilepsy, illuminating the stigma and fear surrounding these conditions. She reflects on her past, acknowledging how her perception of diabetes and seizures has evolved over time—from a topic she shied away from discussing to one she now openly embraces in her mission to support others.

You don’t understand what someone’s going through until you’ve walked a mile in his or her moccasins… (paraphrased from Mary T. Lathrop’s “Judge Softly” poem). 

Deborah, 13:38

Deborah highlights the importance of authenticity and vulnerability in addressing chronic health issues, encouraging her listeners to confront their own struggles and to foster acceptance of themselves and their circumstances. 

  • Deborah emphasizes the importance of authenticity in podcasting and discussing real-life challenges.
  • The fear surrounding chronic illnesses can lead to misunderstandings and isolation in childhood.
  • She acknowledges the emotional impact of having her project management taken over after a seizure.
  • Deborah encourages listeners to find acceptance and balance amidst the challenges life presents.

The episode takes a poignant turn as Deborah recounts a pivotal moment during a live event when she experienced a seizure, leading to a shift in her role within the project she cherished. This change brings up feelings of vulnerability and loss, showcasing how quickly one can feel sidelined due to health challenges. Deborah emphasizes that life, with all its imperfections, is about adjusting and moving forward, even when faced with painful transitions. Through her candid storytelling, she invites listeners to embrace their own stories and find strength in community and shared experiences.

Chapters

  • 02:02 Intro
  • 04:13 Embracing Vulnerability: Sharing the Seizure Journey
  • 07:31 Personal Reflections on Life with Epilepsy
  • 09:41 Living with Chronic Illness
  • 13:53 Understanding Diabetes Through Childhood Experiences
  • 16:33 Finding Balance and Acceptance in Life’s Challenges

Episode Resources

Episode Credits

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Pie, Ice Cream, and Insulin: My Thanksgiving Experience as a Type 1 Diabetic #15

The essence of Thanksgiving transcends the traditional focus on food, embodying a spirit of gratitude, connection, and joy. Deborah eloquently shares her reflections on the holiday, emphasizing how it serves as a reminder to appreciate the loved ones in our lives. For those managing diabetes, particularly Type 1 diabetes, this time of year can present unique challenges. However, Deborah advocates for a balanced approach that allows individuals to partake in the festivities while prioritizing their health. Her perspective encourages a shift from a food-centric view of Thanksgiving to one that celebrates family, laughter, and shared experiences.

I hope you had a wonderful time of balance, self-reflection, and you are looking forward to a wonderful year ahead. 

-Deborah

Throughout the episode, Deborah shares practical tips on how to navigate Thanksgiving dinner as a Type 1 Diabetic. She recounts her strategy of carb counting and insulin management, illustrating how she successfully enjoyed the holiday without significant blood sugar spikes. By sharing her personal stories, such as the unexpected low blood sugar episode and her eventual enjoyment of cranberry sauce, Deborah highlights the importance of adaptability and mindfulness in managing diabetes. Her insights serve not only as guidance for those with diabetes but also as a reminder to everyone that the holiday spirit is about more than just culinary indulgences.

  • Diabetes doesn’t prevent someone from enjoying traditional holiday foods with proper planning.
  • Taking time to reflect on what you’re thankful for can enhance the Thanksgiving experience.

Deborah also tackles the misconceptions surrounding diabetes and the common assumptions people make about dietary limitations. She recounts a conversation with a family member who expressed surprise that she could have pie, showcasing the need for greater understanding of how individuals with diabetes can still enjoy traditional holiday foods. By demystifying her insulin pump and explaining its role in her diabetes management, Deborah aims to foster a sense of empathy and awareness among her audience. The episode culminates in a heartfelt message about the importance of community and support in navigating the complexities of living with diabetes, encouraging listeners to embrace the holiday spirit with gratitude and joy.

Chapters

  • 02:25 Welcome
  • 04:48 Thanksgiving Reflections for Diabetics
  • 08:20 Managing Blood Sugar: Insights and Experiences
  • 09:28 Understanding Type 1 Diabetes Management
  • 11:36 Managing Diabetes: A Personal Experience
  • 13:10 Reflections on Family and Thanksgiving

Episode Resources

Episode Credits

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Diabetes: My Constant Companion, Not My Identity #14

This episode of DiabeticReal features Deborah E reflecting on her unique relationship with diabetes, emphasizing that it does not define her. She candidly discusses the importance of transparency and authenticity in sharing her journey, acknowledging that her feelings towards diabetes may differ from many others. Rather than viewing her condition as an adversary, Deborah likens it to a companion, coexisting with her throughout life. She recounts her early experiences managing diabetes independently, which shaped her resilience and perspective. Ultimately, Deborah encourages listeners to embrace their identities beyond their diagnoses, promoting a message of empowerment and acceptance.

Deborah E opens up about her unique relationship with diabetes, emphasizing the importance of authenticity and transparency in her podcast, DiabeticReal. Reflecting on her personal journey, she shares how her diagnosis at the young age of six shaped her outlook on life. Rather than allowing diabetes to define her, she speaks to the notion of coexisting with the condition, likening it to a companion rather than an adversary. This perspective is contrasted with a humorous anecdote from a discussion she encountered, where another diabetic expressed frustration towards their condition in a comical yet relatable manner. Deborah acknowledges that while many may resonate with that sentiment, her approach is distinctly different; she has never felt the urge to vehemently reject diabetes. Instead, she recognizes the role it plays in her life, underscoring that being diabetic does not diminish her accomplishments or identity. 

Sometimes, you know, when you’re being authentic and being real, you really have to dig deep and be raw

Deborah E, 03:33

Throughout the episode, Deborah challenges listeners to reconsider their relationship with diabetes, encouraging them to see it as a part of their life’s journey rather than a defining characteristic. She articulates that despite the challenges diabetes presents, it has not hindered her from achieving her goals, including her success as a musician. Through candid storytelling, she inspires others to adopt a similar mindset, suggesting that it is possible to thrive alongside diabetes rather than be overshadowed by it. 

  • Deborah E. emphasizes the importance of being transparent and authentic in sharing her diabetes journey.
  • She reflects on her uncommon perspective towards diabetes, viewing it as a companion rather than an enemy.
  • Diabetes does not define her identity or achievements in life.

The episode invites listeners to reconsider how they perceive their own journeys with diabetes, encouraging a shift from viewing it as a limitation to seeing it as a companion that, while challenging, has contributed to their growth. Deborah shares her successes and how they are not overshadowed by her diagnosis, illustrating that identity is multifaceted and complex. Through her reflections, she aims to inspire others to embrace their narratives and find strength in vulnerability, ultimately fostering a community of support and understanding among those navigating similar paths.

Chapters

  • 02:36 Reflecting on the Diabetes Journey
  • 03:40 Embracing Authenticity in Diabetes
  • 09:02 Defining My Identity Beyond Diabetes
  • 13:30 Coping with Diabetes: A Personal Perspective
  • 14:50 Embracing My Journey with Diabetes

Episode Resources

Episode Credits

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Are Diabetics Forgetful? Setting the Record Straight #13

Memory issues are often mistakenly attributed solely to diabetes, but this episode challenges that notion by exploring how various factors can influence memory. Deborah E shares a personal story about a well-meaning friend who suggested that her memory problems were related to her diabetes, prompting her to reflect on the broader implications of such assumptions. She emphasizes that anyone, regardless of their health status, can experience memory lapses for a myriad of reasons, including genetics and aging. Throughout the discussion, Deborah encourages listeners to reconsider how they view themselves and their experiences, reminding them that memory is complex and cannot be reduced to a single diagnosis. With humor and insight, she advocates for a more nuanced understanding of memory challenges, asserting the importance of listening to one’s own body and experiences.

The conversation surrounding memory in the context of diabetes often leans towards the negative, with stereotypes suggesting that diabetics suffer from significant cognitive decline. Deborah E takes a stand against this narrative, sharing her personal journey with diabetes and memory. In a candid discussion, she recounts a moment when a loved one expressed concerns about her memory, attributing it to her diabetes. Rather than accepting this claim at face value, Deborah reflects on her own experiences, noting that memory lapses can stem from a myriad of reasons, including stress, age, and other health issues. This perspective challenges the conventional wisdom that diabetes is the sole culprit behind memory problems.

  • Memory issues can affect anyone, regardless of being diabetic or not, and should not be solely attributed to diabetes.
  • Deborah emphasizes the value of listening to diabetic patients and considering their experiences seriously.
  • Memory issues can arise from various causes, including genetics and aging, not just diabetes.

Deborah emphasizes the need for a more comprehensive understanding of memory issues, especially in the diabetic community. She recounts instances from her past where she was able to recall specific details from long ago, illustrating that memory is not merely a binary issue of having or not having it. Through these anecdotes, she highlights the importance of individual experiences and the danger of generalizations in medical discourse. The episode encourages listeners to reflect on the assumptions made about diabetes and memory, advocating for a more empathetic approach that recognizes the diversity of experiences among diabetics.

Throughout the episode, Deborah also touches upon the importance of communication and understanding within the healthcare system. She encourages both patients and healthcare providers to engage in open dialogues that consider the full spectrum of an individual’s health and history. By fostering a culture of listening and respect, Deborah believes that both parties can work together to create a more supportive environment for managing diabetes and its associated challenges. This episode ultimately serves as a powerful reminder that memory is complex, and individuals with diabetes deserve to be seen beyond their condition, recognized for their capabilities and contributions.

Chapters

  • 02:31 Understanding Memory in Diabetics
  • 10:18 The Importance of Memory, Recording, and Evidence
  • 19:04 Understanding Memory Issues in Diabetes, and Their Implications
  • 24:05 Understanding Memory Gaps and Healing

Episode Resources

Episode Credits

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The Week My Insulin Pump Tried to Kill Me #12

This podcast episode delves into a harrowing experience Deborah had with her insulin pump, which she humorously describes as trying to “kill” her. After a software upgrade to her Medtronic Minimed 780G insulin pump, the default settings dangerously miscalibrated her blood sugar levels, leading her to experience seizures. With her husband away, Deborah faced the challenge of managing her diabetes alone while her pump continually drove her blood sugar down, leaving her in a precarious situation. Despite the frustration of dealing with unhelpful customer support, Deborah’s resilience shone through as she found a way to stabilize her condition. This episode offers a blend of technical information, personal anecdotes, and insights into the complexities of living with diabetes.

Key Takeaways:

  • Deborah underscores the necessity of patients taking control of their own health, with an awareness that sometimes those who “should” be there for them are not.
  • Deborah’s story illustrates the challenges of managing diabetes and the importance of vigilance.

Navigating the intricate world of diabetes management can often lead to unforeseen challenges, especially when technology is involved. Deborah, the host of DiabeticReal, shares a gripping personal story about a harrowing experience with her insulin pump after a routine software upgrade. With a blend of humor and candor, she reflects on the technicalities of the Medtronic Minimed 780G pump, detailing how an innocuous update turned into a near-disaster due to a default setting that dangerously mismanaged her blood sugar levels. This episode serves as a cautionary tale about the importance of understanding medical technology and the potential risks involved when users are left to navigate these systems alone.

The episode wraps up with a triumphant note as Deborah recounts how she ultimately took control of the situation, managing to stabilize her blood sugar and survive the ordeal despite the lack of immediate support from the manufacturer. Her resilience and resourcefulness shine through, inspiring listeners to advocate for themselves and be proactive in their health management. This engaging recounting not only entertains but also educates, making it a must-listen for anyone interested in the intersection of technology and personal health in the diabetes community. Deborah’s story is a testament to the challenges faced by many diabetics and the importance of being informed and prepared for the unexpected.

Chapters

  • 02:04 Introduction to Technical Topics
  • 02:39 The Insulin Pump Incident
  • 04:55 Understanding the Pump Settings
  • 08:03 Understanding SmartGuard Settings
  • 11:44 The Struggles of Managing Diabetes
  • 14:13 Navigating Medical Challenges

Episode Links

Episode Credits

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The Bully and the Baseball Bat #11

In a thought-provoking discussion, Deborah confronts the difficult realities faced by diabetics when dealing with healthcare providers. Her recent experience with her endocrinologist, who she once viewed as an ally, took a disheartening turn when the doctor’s approach felt more like bullying than support. This episode is an exploration of how such interactions can impact a patient’s mental and emotional health, making it clear that the patient-doctor relationship is critical in chronic disease management. Deborah boldly challenges the notion that fear and intimidation can be effective motivators, arguing instead for a compassionate conversation that recognizes the patient as a partner in their own care.

Deborah reflects on her long-term experiences with various doctors, revealing a pattern of bullying behavior that has left many patients feeling alienated and discouraged. She emphasizes that diabetes management is not just about following medical advice; it is about creating a dialogue where patients feel heard and understood. By sharing her emotional struggles during the appointment and her husband’s instinct to defend her, she illustrates the very real psychological toll such encounters can take. The episode articulates a vital truth: effective diabetes care requires more than just medical knowledge; it requires empathy, communication skills, and a willingness to engage with patients as individuals.

The podcast closes with a powerful call to action for both patients and doctors. Deborah encourages diabetics to advocate for themselves and to seek out healthcare providers who approach their care with kindness and respect. At the same time, she urges doctors to cultivate a practice environment that prioritizes understanding and support over intimidation. This episode is not only a personal narrative but also a rallying cry for change within the healthcare community, emphasizing that a respectful and collaborative relationship can lead to better health outcomes for everyone involved.

Takeaways:

  • The medical community often employs a bullying approach towards diabetics, which is unhelpful and detrimental.
  • Effective communication between doctors and patients is crucial for managing diabetes successfully.
  • Diabetics are not resistant to care; they need compassionate interaction rather than intimidation.
  • Patients should not be held solely responsible for misunderstandings regarding appointment schedules and treatment plans.
  • Doctors must recognize their role in a patient’s health journey and not just act as authority figures.
  • Building a supportive and understanding relationship is vital for effective diabetes management.

Chapters

  • 02:23 – The Week’s Episode
  • 04:34 – The Bullying Culture in Diabetes Care
  • 06:57 – The Appointment Experience
  • 08:26 – A Team Effort in Diabetes Management
  • 11:40 – The Power Dynamics in Doctor-Patient Relationships
  • 13:28 – A Call for Civility in Healthcare
  • 13:47 – Conclusion and Reflection

Research Links

Episode Credits

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The Real Complications of Diabetes #10

In this episode, we explore a comprehensive list of what the general public considers to be diabetes-related complications straight from Google, including heart disease, kidney issues, vision loss, and more. 

But hold on, there’s more to the story than just medical definitions. Deborah will share insights from her own journey with Type 1 diabetes, discuss the psychological impacts, and even question the methods used to gather these statistics. 

Is the fear-based approach often taken by healthcare professionals really effective? Join her as she navigates through these complex issues, challenges common misconceptions, and encourages hope and resilience in the face of diabetes. Let’s get real about diabetes and focus on living our best lives!

Chapters

  • 00:00 Intro (and Disclaimer)
  • 02:30 List of Complications
  • 04:45 Validity of Definitions of Complications
  • 10:42 People Will Judge Regardless
  • 11:20 Do Your Best and Forgive Yourself

Research Links

Episode Credits

Please Don’t Break My Baby! #09

This DiabeticReal episode is all about Deborah E’s decision of whether to choose herself and her little girl dream of being “normal” or the possible dream of her unborn child. She knows what she wants, but what about her son?

From her struggles with the medical team to the heart-wrenching decision of whether to break her baby’s collarbone for delivery, she takes us on a roller-coaster of emotions during the 36 hours of labor. 

Despite the hardships, she highlights the power of resilience and the unexpected joy that comes with making sacrifices for the ones we love. Tune in to this raw and honest episode that sheds light on the complexities of life with diabetes and the strength found in facing challenges head-on instead of hiding.

Chapters

  • 00:00 Introduction and Review
  • 08:08 Doctor’s behavior improved after sharing her passion.
  • 12:59 Mom sacrifices her dream to protect son’s future.
  • 15:05 Husband thought wife had died, discovered emergency surgery.
  • 18:45 Successful pregnancy resulting in healthy baby boy.
  • 20:06 Closing

Research Links

Episode Credits

Arguing with a Nutter When Pregnant #08

Deborah E shares the challenges she faced during the first high-risk pregnancy as a type 1 diabetic. She recounts her interactions with her highly-skilled and highly-intelligent perinatologist who had some strange ideas about abilities to control insulin once it enters the body, leading to a ban on self-administration. 

Deborah also reveals the lengths she went to attend a family event, where she and her husband were to be honored, and the dangerously low blood sugar episode that the hospital was sure meant a trip to the morgue. 

Join us as we unfold the unique trials and triumphs of managing diabetes during another pregnancy in this compelling episode of DiabeticReal.

Chapters

  • 00:00 Introduction
  • 05:27 Doctor surmises the ability to expel insulin.
  • 07:56 Challenges for tight diabetic control for baby.
  • 15:31 Leaving hospital AMA for planned honored event.
  • 21:13 Lab worried that Deborah had died.
  • 23:35 Closing

Research Links

Episode Credits

Feeling Like Being Gutted in a Dark Alley #07

In this episode of DiabeticReal, we continue to follow Deborah E’s journey through the challenges of medical care as a diabetic in a small town. But, this time, she travels back to the familiarity of the big city, St. Paul. It seems like it will follow some of the normal paths of the last pregnancy (next episode), but, there are some new technological discoveries that help and there are some unexpected mishaps that make this delivery more difficult than it ever should have been, even in spite of all of the big city benefits…  

Deborah candidly describes feeling like she was being “gutted in a dark alley” during the delivery and the fear and trauma she experienced. Despite the difficulties, she expresses gratitude for the medical staff who ultimately helped her and her baby. Join us as we delve into the raw, real-life moments of a diabetic’s journey on this emotionally intense episode of DiabeticReal.

Chapters

  • 00:00 Introduction and topic introduction.
  • 04:04 Women know their bodies and should be heard.
  • 07:19 Specialist for baby and specialist for mommy; Minimed pump introduced.
  • 11:25 Diabetic births and VBAC not an option.
  • 14:06 No anesthetic and felt the process of C-Section.
  • 19:22 Summary: Grateful for care of medical staff and insulin pump.

Research Links

Episode Credits