Deborah E shares the challenges she faced during the first high-risk pregnancy as a type 1 diabetic. She recounts her interactions with her highly-skilled and highly-intelligent perinatologist who had some strange ideas about abilities to control insulin once it enters the body, leading to a ban on self-administration.
Deborah also reveals the lengths she went to attend a family event, where she and her husband were to be honored, and the dangerously low blood sugar episode that the hospital was sure meant a trip to the morgue.
Join us as we unfold the unique trials and triumphs of managing diabetes during another pregnancy in this compelling episode of DiabeticReal.
Chapters
- 00:00 Introduction
- 05:27 Doctor surmises the ability to expel insulin.
- 07:56 Challenges for tight diabetic control for baby.
- 15:31 Leaving hospital AMA for planned honored event.
- 21:13 Lab worried that Deborah had died.
- 23:35 Closing
Research Links
Episode Credits
Transcript
I'm living inside of this Perfectly Wonderful World.
Deborah E:He assumed that when I would give a shot, that I didn't
Deborah E:want to have diabetes anymore.
Deborah E:That I'm willing it, I'm literally thinking about it so hard, that I'm
Deborah E:willing that insulin to seep back out of my skin, out of my body.
Deborah E:Yeah, I'm, I'm thinking the same thing as you.
Deborah E:I'm thinking he's a nutter.
Michael Anderson:Join Deborah E.
Michael Anderson:Multi-award winning singer, podcaster and speaker who proves that being diagnosed
Michael Anderson:with a life-changing illness as a child, along with countless hospitalizations in
Michael Anderson:a family who told everyone should be dead before she reached puberty does not have
Michael Anderson:to stand in the way of life well-lived.
Narrator:The DiabeticReal podcast and the content of its websites are presented
Narrator:solely for educational purposes and the views and opinions expressed by guests
Narrator:do not necessarily reflect that of the host of the podcast The content is not
Narrator:intended to substitute for professional medical diagnosis advice or treatment
Narrator:ongoing or otherwise Be sure to always seek the advice of your physician or
Narrator:other qualified healthcare provider with any questions regarding your healthcare.
Deborah E:It seems we are on a roll covering pregnancies
Deborah E:with these podcast episodes.
Deborah E:Just a second.
Deborah E:I got to readjust the pumpy here.
Deborah E:Yeah, I named my insulin pump.
Deborah E:We call her I think most the time the gender is her Just
Deborah E:just for fun and call her pumpy.
Deborah E:Anyway, I'm gonna move her out of the way She kind of wanted to be center
Deborah E:stage and she'll have her turn But um, so we're covering pregnancies and the
Deborah E:last episode we covered my daughter's pregnancy I'm trying not to say names
Deborah E:for the sake of, of the kids, because they didn't exactly ask to be named.
Deborah E:But, and it wasn't that I wanted to go in opposite order, but, uh, she's my, my
Deborah E:baby, she's my youngest, and now we're going to go to, uh, her brother, who's
Deborah E:actually older than her, but that fit with the episode that was before that.
Deborah E:Um, and it made sense.
Deborah E:But anyway, let's get to the story instead.
Deborah E:So, this one, this one was kind of interesting.
Deborah E:It was obviously a high-risk pregnancy, just like the one last week that
Deborah E:we're talking about, the last episode.
Deborah E:Uh, any type 1 diabetic is a high-risk pregnancy because there
Deborah E:are extra concerns, obviously.
Deborah E:And more so years ago.
Deborah E:You know, it used to be that, well, as we covered in the last episode,
Deborah E:always had to be a C section, never an option for, for a regular delivery.
Deborah E:With this first pregnancy, had more challenges for many different reasons,
Deborah E:but let's, we'll, we'll go through them.
Deborah E:First of all, the doctor.
Deborah E:Now, the doctor, I'm, you know, I'm going to actually give him a name.
Deborah E:It's not his real name, but I think it's a name that several
Deborah E:of you can probably relate to.
Deborah E:How many of you are fans of the show that was on, let's
Deborah E:see, was it around:Deborah E:I'd have to go look it up.
Deborah E:I'd go Google it right now, but Dr.
Deborah E:House, if any of you know that show, he was a, um, diagnostician.
Deborah E:Uh, played by Hugh Laurie.
Deborah E:Anyway, he could be a pain in the royal butt as far as
Deborah E:personality, but brilliant man.
Deborah E:That was the character on the show, because it seems like he always figured
Deborah E:out, well, you know, I know it's, as my husband say, honey, it's television.
Deborah E:He always figured out what illness or what was wrong with the person, whether
Deborah E:it was no illness or not, figured out what, what was wrong with the person.
Deborah E:But personality-wise, he could rub people the wrong way.
Deborah E:Well, I swear this perinatologist that I had, you know, and perinatologist, he
Deborah E:specializes in high-risk pregnancies.
Deborah E:So they are, they're serious specialists.
Deborah E:When I say serious, this particular Dr.
Deborah E:House that I had, he had done in uterine.
Deborah E:Surgeries on fetuses.
Deborah E:Now, I'm just gonna say, "baby."
Deborah E:I mean, you get to that point where you are operating on a little person.
Deborah E:You're not operating on a fetus that's going to be aborted.
Deborah E:You're operating on a little child, on a little, little human with the
Deborah E:intent of saving that life to be born.
Deborah E:And that is some serious surgery.
Deborah E:I mean, you've seen little babies after they've been born?
Deborah E:Little tiny fingers, little tiny toes, little tiny everything.
Deborah E:Can you imagine how little tiny that is in uterine?
Deborah E:We're talking microscopic.
Deborah E:Well this, this doctor that I had, brilliant doctor, he's surgeon, and
Deborah E:he operated on babies in uterine.
Deborah E:So the man was brilliant.
Deborah E:Personality?
Deborah E:Oh, I could not be married to that man.
Deborah E:Anyway, so I was not complaining as far as having him on my case.
Deborah E:Well, okay, that can be taken in a couple different ways.
Deborah E:On my case, yeah, I didn't want him on my case.
Deborah E:But I mean, on my case as far as a patient.
Deborah E:There was this one incident near the beginning of the pregnancy, and my doc,
Deborah E:like I said, I'm going to call him Dr.
Deborah E:House, so I'm not revealing his name for his privacy's sake.
Deborah E:I don't know if he, favored, you know, thinking that he was a psychologist
Deborah E:or what, but he thought, well, with the number of years that you have had
Deborah E:diabetes, you resent having diabetes.
Deborah E:So therefore, as kind of a, to get back at the diabetes, you're actually trying
Deborah E:to force the insulin out of your body.
Deborah E:Now, I'd already been through a lot of experiences, and, and you'll
Deborah E:hear some more stories as far as the experiences I'd been through.
Deborah E:I'd been through diabetic ketoacidosis and almost died, and that is an awful.
Deborah E:Awful, awful experience.
Deborah E:I think you've heard me tell you about that.
Deborah E:It is just, it is so painful.
Deborah E:I mean, I've said before, I don't wish that on anybody to die that way.
Deborah E:And it's like, why would I ever, ever want to push the insulin out of my
Deborah E:body and not utilize the insulin?
Deborah E:I mean, this, you know, the episode that you heard about cooking the
Deborah E:insulin, it's along those lines.
Deborah E:I wouldn't want to cook the insulin because it makes the insulin not work.
Deborah E:Same thing.
Deborah E:I don't want to push the insulin out of my body.
Deborah E:And if you're all sitting there going, Huh?
Deborah E:What is she talking about?
Deborah E:Pushing the insulin out of her body?
Deborah E:Yeah.
Deborah E:Yeah.
Deborah E:That's exactly where I was when he's saying, You're pushing
Deborah E:the insulin out of your body.
Deborah E:I'm looking at him and saying, What?
Deborah E:On Earth?
Deborah E:Or, you know, WTF?
Deborah E:Pushing the insulin out of my body and he said well you you're at that
Deborah E:point I wasn't on an insulin pump yet Now if if you heard the last last
Deborah E:week's episode you heard that I was given an insulin pump Medtronic on the
Deborah E:second pregnancy and I've been on an insulin pump ever since yay Medtronic
Deborah E:yay Minimed It's actually the pump.
Deborah E:But anyway, the first pregnancy, I was still on insulin shots, just like
Deborah E:I'd had when I was first diagnosed.
Deborah E:So, at that point, we were doing four shots a day.
Deborah E:We were, you know, trying to manage it as tightly as possible because for the
Deborah E:sake of the baby, we needed this diabetes to be super, super tightly controlled.
Deborah E:And He assumed that when I would give a shot, and the insulin would
Deborah E:go into my body, that I didn't want to have diabetes anymore.
Deborah E:So then I would psychologically expel, like I would, I would will that insulin
Deborah E:that I just pushed into the tissue.
Deborah E:Because you're putting it into the subcutaneous tissue in your body.
Deborah E:It's not going IM, it's not going intramuscular, it's going subcutaneous.
Deborah E:Just that, that first layer, you know, the skin, that I'm willing it.
Deborah E:I'm, I'm literally thinking about it so hard that I'm willing that insulin to
Deborah E:seep back out of my skin, out of my body.
Deborah E:Yeah, I'm, I'm thinking the same thing as you.
Deborah E:I'm thinking he's a nutter and he needs to go see a shrink because I do
Deborah E:not have superpowers, I promise you.
Deborah E:I don't have superpowers.
Deborah E:I don't have any ability to make insulin seep back out of my body.
Deborah E:In fact, you know what?
Deborah E:I was so curious about this, this thing that he's saying that I'm
Deborah E:doing, that I, I actually tried it.
Deborah E:I tried it.
Deborah E:I put insulin in and then I sat there and I looked at the spot
Deborah E:where I put the insulin in.
Deborah E:I made sure that my, I was at a point where I could handle it so
Deborah E:that if I succeeded, I was okay.
Deborah E:And I thought, okay, I'm going to will this insulin back out.
Deborah E:I couldn't do it.
Deborah E:I sat there, I'm willing you to come back out, I'm like, I'm crazy, I
Deborah E:couldn't, I couldn't will it back out of myself, I couldn't do it no way, I
Deborah E:could not have done that to save my life.
Deborah E:So maybe it's a nice thought and somehow psychosomatically people can do it, I
Deborah E:don't know, I don't want to argue with the man, he is brilliant, I don't want to
Deborah E:argue with the thought that maybe somebody somewhere, but even if it is possible.
Deborah E:It certainly is not something that I ever want to do, or ever wanted
Deborah E:to do, but arguing with him was not accomplishing anything during our visits.
Deborah E:So his answer was, because he was bound and determined that I was doing that,
Deborah E:he forbid me to give my own shots.
Deborah E:Yes, I was, a little bit of me was hurt, like, you don't trust me to give shots
Deborah E:to myself after I've been giving my shots to myself since I was eight years old.
Deborah E:That, that's I was a little bit angry.
Deborah E:I was a little bit, you know, I was, I felt humiliated.
Deborah E:I felt, you know, all those feelings.
Deborah E:You can make a whole list of them and you're probably right as far as how I was
Deborah E:feeling, but my focus was on the baby.
Deborah E:I'm not trying to sound like a saint, but really that is the focus.
Deborah E:Let's get this baby into the world as healthy as possible.
Deborah E:So we had to, it was a strange schedule, but we had to somehow figure out how
Deborah E:my mother could come over to my house.
Deborah E:Yeah.
Deborah E:Talk about humiliating.
Deborah E:I mean, here, yeah.
Deborah E:Yeah.
Deborah E:I'm living with my husband in my own house, but I have to have
Deborah E:my mommy come over and give me a shot as an adult woman because I'm
Deborah E:not allowed to give my own shot.
Deborah E:Yeah, I should have been rebellious and just snuck it and given me my
Deborah E:own shot, but I was a good girl.
Deborah E:I was following the doctor's orders.
Deborah E:And my mommy, who happens to also be an RN, would come over and give the shot.
Deborah E:My husband, who up to that point had never given shots before,
Deborah E:I mean, why would he have to?
Deborah E:He married a woman who, I mean, I'm very much so.
Deborah E:I take care of myself.
Deborah E:You know, I can do it myself.
Deborah E:I've been saying that since I was a little girl.
Deborah E:I can do it myself.
Deborah E:So I always took care of my own health on that one.
Deborah E:Of course, my husband helped me and supported me, but he
Deborah E:had to learn how to give shots.
Deborah E:I mean, the nurse in the, in the office, all the nurses were always sweet, all the
Deborah E:OBGYN nurses, and they were so supportive.
Deborah E:I think they thought.
Deborah E:This was a little crazy too, but they were very supportive and they, they
Deborah E:taught my husband how to give shots.
Deborah E:And so my husband would give the shot before he went to work.
Deborah E:My mommy would come over and do, I think one during the day.
Deborah E:And then my husband would be home at the end of the day
Deborah E:and he'd give the other shot.
Deborah E:And then the bedtime shot.
Deborah E:Oh, I'm telling you people, I felt so humiliated.
Deborah E:Anyway, so we got past that one.
Deborah E:I wanted to fight with Dr.
Deborah E:House, but it, again, doesn't do any good to fight with him about any of the issues.
Deborah E:So I just tried to zip it.
Deborah E:Which wasn't, wasn't necessarily easy, but I think it was a
Deborah E:learning experience to see if we could learn how to zip our mouth.
Deborah E:Oh, there was one other event.
Deborah E:And speaking of events, my mother was having a family event, and it actually,
Deborah E:my husband and myself, we were the honorees, if you will, and she had
Deborah E:gone all out, I mean, she'd made all the food, and my mother could cook.
Deborah E:My mum, if you will.
Deborah E:I mean, she made little English tea cakes and just, oh, and my parents had this big
Deborah E:beautiful house, and it was a big deal.
Deborah E:I mean, there were like a hundred people coming over and the whole
Deborah E:thing, and invitations had gone out.
Deborah E:I mean, you would think it was a ball.
Deborah E:It was equivalent of having.
Deborah E:And basically we were the honorees.
Deborah E:We were the guest of honor and I was in the hospital at the time.
Deborah E:You see, I would be in the hospital for two weeks and
Deborah E:then it would be out for three.
Deborah E:And then I would be in for two, and then I would be out for three, and basically,
Deborah E:they were at the hospital, they would have these suites, they were called
Deborah E:family suites, they're postpartum floor, and it was meant to be, like, where
Deborah E:family, you know, you would Have your baby, and then that's where the husband
Deborah E:could come stay, and, and that's where the baby was introduced to the world
Deborah E:and so forth, and that's where you could have everyone all set up, there's a nice
Deborah E:little table there, there's a little couch, there was a, you know, a double
Deborah E:bed, and there's a whole nice thing, and, and I would actually, they'd set
Deborah E:us up in the suite, because I would be there for two weeks, it was actually
Deborah E:a nice room to be honest with you, so when I did stay there for two weeks, and
Deborah E:all the nurses, They knew my husband.
Deborah E:I mean, my husband would go to work.
Deborah E:He'd come, it's kind of funny in some levels, but he would go to work.
Deborah E:And then when he was done, he'd come over to the hospital and
Deborah E:hang out there on the couch.
Deborah E:And we had a little laptop and it it's kind of pathetic and kind
Deborah E:of funny all rolled in, but you got to go with life the way it.
Deborah E:You know, the way it goes.
Deborah E:Anyway, we'll come back to that suite.
Deborah E:Oh, it was pink.
Deborah E:It was really, really cute.
Deborah E:Anyway, so we were all set up in the suite, and the doctor says, No,
Deborah E:no, you are not going to this event.
Deborah E:And this event had been planned for like six weeks, eight weeks ahead of time.
Deborah E:And I thought, can you, can you please discharge me?
Deborah E:So I can go to this event.
Deborah E:I mean, the event had been planned before I had gone to the hospital
Deborah E:for that two week period of time.
Deborah E:Because like I said, in for two weeks, out for three.
Deborah E:In for two, out for three.
Deborah E:And it's not like that was planned, like, hey, it's your two week period of time.
Deborah E:It just so happened that's, that's how it ended up.
Deborah E:I was in for two, out for three.
Deborah E:And he's like, nope, no way.
Deborah E:And even the nurses were like, come on, Dr.
Deborah E:House.
Deborah E:Can't shoot.
Deborah E:Can't you just let her go?
Deborah E:And my mother, who, you know, worked for a different hospital,
Deborah E:but she's like, you know, I can't do anything to you if you go AMA.
Deborah E:And AMA is against medical advice.
Deborah E:So, basically, we didn't come out and say we were going to do that, but we
Deborah E:kind of, yeah, you know, hinted, so the nurses knew what we were going to do.
Deborah E:And I got all dressed up in my little, in the suite, got all dressed up
Deborah E:in the dress, and, and my husband helped me and, and The nurses came
Deborah E:in and they, they took out my IVs.
Deborah E:Sort of, it's like, we're not doing this because we're not helping you
Deborah E:go AMA, but we are doing this because we want to pull out the IVs properly.
Deborah E:Kind of a strange situation, but then I got dressed up.
Deborah E:I went to the event.
Deborah E:I was the honored guest and then we came back and the nurses just carefully
Deborah E:put IVs, fresh IVs back in and tucked me into the hospital bed and, oh, and
Deborah E:of course, my mom made up a nice tray of goodies for the nurses as thank you
Deborah E:and we brought food back and everything for the nurses and they loved it.
Deborah E:But it was just this, it was never spoken about.
Deborah E:I think we even brought food back for Dr.
Deborah E:House, but it was just this, yep, we kind of snuck off, and yet we
Deborah E:didn't sneak off to the AMA to go to the event and then came back.
Deborah E:It was as if we didn't leave the hospital, but we did leave the hospital.
Deborah E:So, anyway.
Deborah E:I had to have blood drawn every, what was it, four times a day.
Deborah E:And I'm a hard stick, as they say about me.
Deborah E:It's hard to draw blood from me, no matter what.
Deborah E:And all the tricks, all the drink lots of liquid, everything.
Deborah E:So, we have to make sure they're switching from arm to arm.
Deborah E:The doctor forbid them to do it from my feet, from anywhere except my arm.
Deborah E:They couldn't do it from my hand, anything.
Deborah E:So, What my husband and I were doing is we would, it was a double bed in
Deborah E:this suite, we would switch sides, so that whichever arm was nearest to the
Deborah E:outside of the bed, that was the arm that was ready for the next blood draw.
Deborah E:Well, these poor, these poor, um These poor people that would, I cannot
Deborah E:pronounce the word, I would try, but you're going to have to Google that one.
Deborah E:It's, it's a hard word to pronounce, but the people, the people from the lab that
Deborah E:would come up and, and to do the, the draws, they came over and they grabbed
Deborah E:my and, my husband's arm to draw blood and he's like whoa whoa whoa wait wait
Deborah E:wait i'm not the one that's pregnant see this belly and you know it ain't it ain't
Deborah E:a baby there's no baby in there but i'm thinking can you i do not have a hair
Deborah E:i mean my husband You know, he's, he's not like, you know, the creature from
Deborah E:the Black Lagoon or anything like that.
Deborah E:But I mean, he's, he's got a hairy arm and I do not have a hairy arm.
Deborah E:And I'm thinking, what do these people think that this woman has a really
Deborah E:super, super muscular and and hairy arm, but it's like, come on guys, my arm
Deborah E:is like half the size of my husband's.
Deborah E:It's dainty and it's not hairy.
Deborah E:It's, I'm over here people, I'm on the other side of the bed,
Deborah E:but these poor people, we kept, we kept them hopping, literally.
Deborah E:Fortunately, my husband caught them before they took the wrong
Deborah E:blood and realized that they had a non-diabetic male that was pregnant.
Deborah E:I had been concerned.
Deborah E:Because of having seizures from low blood sugars that it is possible that
Deborah E:I would go into a seizure from a low blood sugar in the pregnancy and That
Deborah E:was always my concern it turns out after both the pregnancies because
Deborah E:that was considered that was a concern that I had with both of them I found
Deborah E:out that for some reason now, I don't know if this is for sure I don't know.
Deborah E:They want to go test the theory, but I guess a diabetic body will not
Deborah E:Have a seizure while it's pregnant.
Deborah E:That's what the doctors say.
Deborah E:I'm not 100 percent sure that that's true for all humans But
Deborah E:again, I don't think you want to go out there and actually test it.
Deborah E:What I found out was it will simply die It won't go into a seizure, it'll just die.
Deborah E:That's probably true, because I had an episode when I was at the
Deborah E:hospital, we were staying in that little suite, and my blood sugar
Deborah E:had gotten so low that I wasn't actually feeling the low blood sugar.
Deborah E:I'd gotten past the symptoms of low blood sugar into giddy.
Deborah E:You would have thought that I was drunk off my butt.
Deborah E:I was just super, super giddy, and giggly, and goofy, and
Deborah E:just, I wasn't making any sense.
Deborah E:And my husband was there at the time, and thank God my husband was there at
Deborah E:the time, because I think I was, Getting ready to go take a bath, and he was with
Deborah E:me, and had I been alone, and the nurses had, usually the nurses go with you, and
Deborah E:they would have gone with me, but had they not caught it, I would have probably
Deborah E:crumpled up in a corner, gone to sleep, and I wouldn't be here today, and I was
Deborah E:feeling off, and so he mentioned something to the nurses, and I tried to do a blood
Deborah E:sugar, and the, the meter would not read.
Deborah E:So he grabbed the nurses, and it just so happened that one of the,
Deborah E:the people's coming up for a lab draw anyway, so they took blood.
Deborah E:But when, of course, when the meter Wouldn't read the the blood
Deborah E:sugar and it said it was too low.
Deborah E:They're like, no, no, you're drinking sugar right now And so they grabbed
Deborah E:juice and my husband had he we always even though the hospital would treat
Deborah E:the low blood sugar We always kept sugar soda on the right near the window there.
Deborah E:Well, my husband had it.
Deborah E:So it was nice and cool even for him to drink as well.
Deborah E:We, we, like I said, we were set up like style in there since we
Deborah E:were there for so many weeks.
Deborah E:So we grabbed sugar soda and I downed it right away.
Deborah E:Well, the lab took the, you know, took the blood down to
Deborah E:the lab and they processed it.
Deborah E:They called up to the postpartum because I was staying, it's, I'm
Deborah E:staying in postpartum even though I haven't delivered yet because it's
Deborah E:not normal that, that women stay before they have the baby like that.
Deborah E:So it's the postpartum floor, but.
Deborah E:They called up there, and they were like, Is she alive?
Deborah E:It's like, is who, what?
Deborah E:They said, we just checked the blood sugar.
Deborah E:This blood sugar is 16.
Deborah E:This woman is dead.
Deborah E:Oh, no, no, no.
Deborah E:She's not dead.
Deborah E:She lived through that.
Deborah E:She lived through the blood sugar.
Deborah E:Said, oh yeah, we caught it.
Deborah E:We gave her juice.
Deborah E:And they're like, oh, they were scared when they saw how low
Deborah E:the blood sugar was in the lab.
Deborah E:And there aren't meters that will read that low.
Deborah E:But the hospitals, of course, have machinery that will read that low.
Deborah E:And they caught that the blood sugar was 16.
Deborah E:So I think maybe the doctors are correct when they say that a diabetic body
Deborah E:will not actually go into a seizure.
Deborah E:It just simply has a blood sugar that will go so low that You just expire.
Deborah E:Any of you pregnant ladies out there, make sure you keep your
Deborah E:blood sugar up when you're pregnant.
Deborah E:You do not want to die.
Deborah E:So we get to a point where I'm delivering.
Deborah E:Yes, we finally get through this pregnancy.
Deborah E:We finally get to a point where we're delivering.
Deborah E:I know a lot of people say, Well, you have no idea how much
Deborah E:I went through to deliver you.
Deborah E:And at that, I am going to save the rest of this story for the
Deborah E:next episode of DiabeticReal.
Deborah E:And this is Deborah, signing off.
Michael Anderson:Thanks for listening to this episode of DiabeticReal.
Michael Anderson:For more information about this podcast, as well as links and fun
Michael Anderson:stuff related to DiabeticReal, visit us at our website at diabeticreal.com.
Michael Anderson:Now we'll listen as Deborah E.
Michael Anderson:herself sings one of her favorite songs.
Michael Anderson:Song is called Perfectly Wonderful World, written by Denny Martin and Jaimee Paul,
Michael Anderson:engineered by me, of course, your host, Michael, in our Seaside Records studio
Michael Anderson:here in lovely Los Angeles, California.
Michael Anderson:It was on the number one ReverbNation charts for over a
Michael Anderson:year and still charts very well.
Michael Anderson:So, have a pleasant moment and listen to Perfectly Wonderful World.
Deborah E:Yes, I'm living inside of this Perfectly Wonderful World.